"Todo pasa y todo queda,
pero lo nuestro es pasar,
pasar haciendo caminos, caminos sobre el mar.
 |
| Fuente: ATNA |
el camino y nada más;
caminante, no hay camino,
se hace camino al andar.
.
Al andar se hace camino
y al volver la vista atrás
se ve la senda que nunca
se ha de volver a pisar."
CANTARES. Antonio Machado
Hoy, queremos mencionar el trabajo, que día a día, están realizando diferentes organizaciones y fundaciones en la información tanto a pacientes como a profesionales de la salud acerca de la Neuromielitis Optica (NMO) o Enfermedad de Devic, así como sensibilizar a las diferentes instituciones de salud en la necesidad de nuevas investigaciones y tratamientos más efectivos.
En fin, se encuentran trabajando para el incremento de la calidad de vida de los pacientes porque con diagnósticos tempranos y tratamientos más específicos, muchas de las secuelas que sufren los pacientes después de las primeras crisis podrían minimizarse al máximo
Y, en este sentido, queremos señalar y promocionar la labor de SistaMoon Foundation, quien además de trabajar en todos los aspectos explicados anteriormente, promociona el día a día de los pacientes, como luchan por encontrar su espacio en la sociedad, en fin,...como luchan por superarse a ellos mismos...
Estas son las palabras de SistaMoon Foundation y este, es uno de sus videos promocionales...
Adelante... Caminante, no hay camino....Se hace camino al andar...
About SistaMoon Foundation
The SistaMoon Foundation advocates for people who are disabled due to having Devic’s Disease. We write letters to insurance companies and Doctors as an advocate to help ensure treatment and services necessary for improvements are met. We help to locate Neurologists for people who do not have one that is knowledgeable in the area of Devic’s Disease. We facilitate consultations with PCP’s and or Neurologists with Neurologists that do have a vast knowledge in the area of Devic’s Disease.
We call and write letters to U.S. Senators, Governors of individual states to help individuals who are on the waiting list for the Medicaid Waiver Program get services quicker. We have provided individuals with a sample justification letter. This is a letter that justifies why a person may need services or equipment as it relates to their disability. For example, you may need to justify why you need a standing frame or on-going physical or occupational therapy.
The Founder and CEO has personally called people who have Devic’s Disease just to listen, talk or motivate if needed. She also wrote to the Social Security Administration regarding adding Devic’s Disease to the list of diseases/disorders to their “Compassionate...
We call and write letters to U.S. Senators, Governors of individual states to help individuals who are on the waiting list for the Medicaid Waiver Program get services quicker. We have provided individuals with a sample justification letter. This is a letter that justifies why a person may need services or equipment as it relates to their disability. For example, you may need to justify why you need a standing frame or on-going physical or occupational therapy.
The Founder and CEO has personally called people who have Devic’s Disease just to listen, talk or motivate if needed. She also wrote to the Social Security Administration regarding adding Devic’s Disease to the list of diseases/disorders to their “Compassionate...
